She Aids Group That Aided Her

- A Newsday article reprinted by permission, Newsday, Inc.
Copyright, 1995

When her husband, Joseph, was diagnosed with Alzheimer's in 1985, Mary Koch did what most wives-turned-caregivers would do. She joined an organization that offered support groups and advice. In her case, the Long Island chapter of the Alzheimer's Association, with an office in Patchogue.

After her husband died in 1987, Koch,now 73, remained an active supporter. This dedication has led her up the volunteer ladder to her present position as the chapter's legislativeadvocate. She also leads a support group in Elmont.

"We have twenty-eight support groups for
caregivers on Long Island," said Koch, who lives in Uniondale. "I was part of a support group when my husband was diagnosed. We discuss problems and everyone tries to help each other." Names of day-care groups, respite-care contacts and Medicaid information are offered at these meetings, often held twice monthly. "We encourage people to go to support groups," she said. "It helps to know how others handle situations."

A former social studies teacher at Uniondale High School, she now uses that training in her advocacy role. She suggests that the chapter's 500 registered members write
letters to the state and contact congressmen whenever legislation affecting Alzheimer's is on the agenda. "I'm concerned about Medicaid cuts as it applies to home care," Koch said. "Alzheimer patients are not able to follow advice to push a button [to summon help]. They need caregivers a full day."

Based on census figures, she estimates there are about 40,000 families with Alzheimer
patients on Long Island. For further information, contact Koch at 486-5607 or the Patchogue office at 289-6335.